No Aggregation Without Representation
Light Collective founder Andrea Downing explores patient data rights, corporate health data aggregation, and the urgent need for patient-led cybersecurity advocacy.
Summary
Patients as the Center of Healthcare Cybersecurity
In the wake of hospital ransomware disruptions and mass health data broker aggregation, patient communities face severe privacy and clinical safety risks without a seat at the policy table.
The Exploitation of Unregulated Health Data
Andrea Downing investigates how commercial health apps, online patient support groups, and marketing trackers harvest sensitive clinical data outside HIPAA protections.
Demanding Patient Representation in Cybersecurity Governance
Downing argues for 'No Aggregation Without Representation', urging policymakers and researchers to treat patients as vital stakeholders in digital health security design.
Building Grassroots Patient Cyber Collectives
The presentation showcases the Light Collective's initiatives to train patient advocates in digital rights, vulnerability reporting, and algorithmic accountability.
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